Autism & Loneliness

Hello everyone–happy new year!!  So sorry for the delay in blogging.  The holidays and everything else that comes along with them really threw us off !Capture

Justin wrote about loneliness and Autism–something that a lot of people don’t understand, I think.  I hope you enjoy reading about it and can relate! I know I can.  I’d love to hear your thoughts about this and if you struggle with this.  What do you do?

Loneliness is something that comes with autism; at least I feel it does. It sucks to be surrounded by people who love you, but you are too scared to even speak to them or even approach them. That’s how I am.  I have an older brother and an older sister who I look up and love immensely, but if it wasn’t for my wife, I couldn’t speak to them.  I get too scared to talk to them, which is ridiculous because obviously they love me.  But as soon as they walk in the room I shut down.  I’ve scripted conversations in my head to them, ask them questions, tell them I want to spend more time with them, but then I actually see them, and I shut down.  I can’t speak.  My brain stops me from being able to do anything, so I start talking about random shit that doesn’t make sense or they don’t care about.

This is when I really understand other autistic people when they say you feel like you’re on an alien planet.  In social gatherings, with people I know and love, I feel insanely lost and start sweating.  I just don’t speak at all, and then they probably think that I’m mad or irritated, which is definitely not the case.  Sometimes I just want to crawl into a cave when I feel like this, or hiding in the corner.

It gets worse when I don’t see them often, too.  I lived with my mom for about 30 some years, and when I’m around her, I don’t really know what to say.  She loves to talk, so she usually does, which is great, because I have no pressure to say anything.  This is like this with my best friend.  We’ve been friends since grade school, but I don’t see him enough, and then when I finally do, I feel like an idiot because I don’t know what the hell to talk about.  I end up just being quiet and being weird.  Thankfully he’s weird like me, so he doesn’t care, but I feel stupid.

I love reading and biographies are one of my favorite things to read.  One of the most impactful things I’ve read about musicians’ biographies are that they can be surrounded by people and want nothing but the best for you and love you, but you feel like you are completely alone.  That’s one of the biggest reasons I want counseling; I want to get over this.  I’m sure I’m not the only one that feels like this.

Does anyone else struggle with this?  How do you overcome it?  What do you do?

Aspies + Weed = True Love?

I wrote a blog post about weed before, and how much it’s helped Justin’s life.  We were both anti-pot when we started dating, but since it became legalized here in Washington, we both tried it, and I cannot begin to express how much it’s helped both of us (I can finally sleep).  I asked Justin to write what it’s like from his perspective.

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Weed, marijuana, pot, green, dope, Maryjane, whatever you call, it I couldn’t imagine my life without it now. All my life I was straight edge.  I’ve never even been drunk to this day and I just turned 35. I had only tried weed twice before I really started smoking it regularly 2 years ago. I have recently been diagnosed with autism which doesn’t bother me; I am still me, but I stress 24/7.  I worry about shit I shouldn’t, but with weed, I take one hit, and boom–that worry goes away. Not only that but I am more open and can talk to people I may not know as well.

Weed has saved me, honestly.  I’ve lived in Washington state for my whole life.  It’s beautiful here.  Forests, waterfalls, national parks, etc, and so much to explore.  When I was younger, I never explored.  I stayed inside and just played video games.  Since I started smoking pot, I wanted to LIVE.  I wanted to get out and start seeing this state, and explore, and we want to travel.  It made me see that you should stop caring about cell phones, TVs, internet, and realize it’s bullshit that’ll just hold you back.

Before I started weed I had a hard time telling my wife she was gorgeous or that I loved her just because stress or just forgetfulness. With weed, I tell her all the time.  I tell her that she’s hot right to her face, which is hard for me and was hard for me.  Weed takes away my “What ifs.”   Since I’ve been smoking weed, it has improved my mood and helps control my melt downs a little.

Weed also helps me with my eating—which can be helpful for parents with autistic children or teenagers.  I used to be a really picky eater.  Since I started smoking, I realized there are so many different types of food out there and I love to try new recipes—something I NEVER did when I was younger.  I also discovered I love to cook. I also can realize talents I have like mechanical work that I never felt like I had confidence for.

It also helps me focus on tasks.  Before I started smoking I would want to cross stitch, play games, watch a movie, and about 10 minutes into it, I’d start getting distracted and start thinking about 10,000 other things and never finish what I started.  With weed, it keeps me focused on just one task, and helps me finish.

It really bothers me when people who smoke weed are labeled as lazy.  What about people like me, with a brain issue that I can’t control?  With weed, I’m the opposite of lazy.  I can finally focus on things and relax and be myself.  I can also tell you this is not a “gateway” drug.  Tara & I have both been using pot for our issues, and neither of us have had a desire to start shooting up heroin or snorting coke.  She gets high and goes to sleep (wow, dangerous), and I get high and start being creative.  Yeah…really a scary drug, for sure.

I’m not saying everyone should start smoking pot, but from this Aspie’s point of view, pot honestly saved my life, and probably my relationship.  If you or a loved one is struggling, try it.  It might save their life, too.

Justin and Our Relationship

I love Justin.  He is my everything.  I asked him to write a blog about our relationship, and here is what he’s got to say.

Relationships

Yikes.  This topic is harder for me, because it’s more emotions, and as I am learning, I don’t know much about most emotions. I look at my relationship with Tara, and I feel like it’s something completely different from every other relationship I’ve ever had.  I can’t explain it, really–I guess it’s the knowledge she was the one to marry maybe?  Insert barfing noise here.

I guess I am not normal in the terms of how I view my relationship. With Tara I don’t feel like we have a relationship—it’s deeper than that for me.  She is my other half and I mean that in the way it sounds. There are days where I have to go to the doctor’s or counselor’s, and I hate it because I don’t want to speak and I don’t want to deal with society. With Tara, I am not scared at all.  If I go somewhere and I am feeling a little overwhelmed, I don’t have to say anything to her at all.  She can tell by my posture and my ticks that I’m overwhelmed.

A lot of people wonder why we work together so well.  We have only been in two fights ever. My past girlfriends–no offense to them this is just how they work–wouldn’t say how they felt or what they wanted, and that’s hard for me, so we fought constantly.  I don’t mean to be cold, but if you don’t tell me or show me you’re upset, I can’t tell.  With Tara, she’ll just tell me when she wants a hug or to be comforted, and it doesn’t bother her.  She doesn’t expect me to be a mind-reader.  Physical touch and hugs can be uncomfortable for me (more on that later), but I’ve gotten a lot better with her.

I use this story as an example: I was at my now wife’s house when we were dating.  It was close to my birthday, and she was framing my present.  I went over to her house and apparently it was on the ironing board right when I walked in.  Her heart sank and she thought for sure that I had seen it.  Well I was so focused on my phone or the floor or whatever that I didn’t even notice.  I had no idea and never even saw it.

I don’t think I could put my finger on just one thing in our relationship that makes it so successful; there are a lot of ways that we work. I want to expand my world, and she helps a lot with that.  I used to be one of those people that stayed in my house all the time, I never went to parties or really did anything outside of family camping, but Tara makes me want to get out and explore the state.  She helps me feel safe.

Another thing that’s hard for me is finding or picking something out. For example if we are going out to eat if Tara says where do you want to go my brain immediately things of every restaurant within 100 miles of us and that is insanely overwhelming, so it’s easier for me if she says what she wants or narrows down the choices.  Sometimes if I can’t decide where to go or what to eat I just don’t go out or I end up eating the same stuff I’ve had for a week.

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Stimming & Justin

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(Us on 10/7/2017; at one of the most beautiful places in Washington state–Twanoh State Park)

I asked Justin to write a blog post about stimming.  We watched the movie The Accountant, with Ben Affleck, a while ago, and he does the stimming where he racks a piece of wood on his shins listening to hardcore music for 10 minutes.  I didn’t really get it.  From a neuro-typical point of view, it looks crazy.  This apparently is called stimming, which is sort of a self-soothing/stimulation thing for Aspies and Autism-spectrum people everywhere.  I don’t really notice now when Justin stims, and I know it’s something he needs to do.  His stimming behavior isn’t too out of this world–he just gets lost in music or does 15 things at once, and it seems to help.  I found a really good article about it:

Autism & Stimming

I recommend reading this.  It helps to understand why they do this & that it’s normal for them.

So I had Justin write about it, too.  Here’s what it’s like in his world.

 

Stimming From An Aspie’s point of view

Have you ever watched a really, really good movie that keeps you on the edge of your seat the whole time?  Or read a mystery novel that you just can’t even?  You know that weird tension you feel where you feel you gotta keep bouncing your leg or move to the edge of your seat, or just can’t sit still?

That’s how autism feels some days.  All day.  ALL DAY.  It’s not regular.  Some days I wake up just fine, and some days I wake up feeling like I want to run around the block 17 times.  I feel the odd tension and just have this weird energy.  Some people with Autism shake, or rock back and forth, or flail their hands and legs and arms.  But it’s only temporary.  I didn’t know what it was until recently, and it’s stimming.

Apparently I’ve been stimming most of my life.  For me, loud music is my go-to.  I don’t really care what kind of music it is (not screamo or anything like that), but I just pick the song or station, blare it (sorry, neighbors) and it takes me to a totally blank place.  I don’t feel my whole body, and I don’t have my usual billion thoughts.  I just feel better.  But sometimes I feel emotional afterwards, which is weird, and feel like I need to cry.  I haven’t figured that out yet.

Multi-tasking, or doing 10 things at once helps me too.  While typing this up, I also have a YouTube up with a football player’s biography and another YouTube up with my favorite band Korn playing in the background.  Some people can’t do this (my wife, for example), because it’s too much at once.  But it helps me a lot.  I am only focusing all my thoughts on this writing, but I also can hear all that and focus on the writing at the same time.  I also can get completely lost in researching things.  My wife told me about Chernobyl, which I had never heard of until I met her.  I got obsessed with learning about this, and spent hours losing track of time and completely sucking up all information I could find on this topic.  This was me 24/7.  I barely did anything else (except the music and other stuff in the background, of course!).

Up until I married my wife, I thought everyone could do this.  She can’t have anything on while she’s focusing, like on homework or something.

So if anyone you know is autistic or has Asperger’s and flails their hands or taps, that’s usually why.  Stimming helps us a lot.

 

Be patient with those who have this behavior.  You know how that anxiety can feel, and they feel it worse than the neuro-typical.  Don’t shame them for it, and just let them do what they gotta do.

Do you stim?  Do you know others who stim and what their self-soothing behavior is?  Share with us. We’d love to hear how others tackle this.

More Words from the Aspie Mouth!

I like it when Justin writes blogs for me to slaughter.  I mean–edit (ahem).  I hope that you can find some relation to what he feels, and vice versa.  I’d like Justin to know he’s not alone with this weird brain he’s got, and that I love him no matter how hard it is to get him to speak to people (or to stop talking!!!).

Shit Justin says:

I don’t know how it is for other people, but for me there is more than one factor as to why it’s hard for me to speak to people. One is if I don’t know the person, I will first notice their mannerisms and how they speak.  Then, however they speak, I will mimic them and their cadence because I don’t know how to speak to them.

From beginning to end of a conversation, I really don’t know when to start and when to stop, so I have a tendency to start a conversation and then I will trail off. Sometimes I feel like my brain’s moving so fast I can’t slow down my thoughts.  I do know that when I get excited, I will talk really fast, and that also happens when I get really nervous.  It drove my wife crazy when she first met me because I had so much I wanted to say I had to slow down how fast I was talking.

It’s also hard to know what to do with my hands, and I don’t know if other Aspies have that problem.  I try to focus on their body movements and try to copy them, but if they’re not moving, I start to fidget and play with my phone or goatee.

I also HATE eye contact.  It’s the worst thing in the world.  Okay, well, I take that back. It’s not THAT bad.  But it’s really stressful.  I try to look people in the eye because I know it’s rude, but when someone looks into my eyes, I feel like they can see into my soul or memories.  I know they can’t, obviously, but that’s what it feels like.  I barely look at anyone in the eyes, and if I do, it’s my wife, and only for a minute or two.  It’s not me trying to be disrespectful or being a dick—that’s just how it is for me.  I also feel like a creeper if I stare at peoples’ eyes too much.

Socializing is a weird thing for me—if the conversation lags or if I don’t know what to talk about, I’ll bring up random crap, like family memories or something else weird.  I just don’t know what to talk about.  This happens if I don’t see someone for a while, too.  My best friend in the world and I barely see each other, because it legitimately stresses me out because I haven’t seen him for a while.  I worry what to talk about (though my wife says we don’t ever shut up anyway).

I feel like avoiding socializing altogether is easier.  The day after I socialize or play games or just hang out with people I’m exhausted.  It’s like a physical thing for me.

Are any other Aspies like this too?

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The Aspie Speaks!

For the first time ever, Justin wrote a blog post.  I want to share with you the view that we both have about autism and vaccines.  From someone with autism, here’s a perspective that I’d like you all to hear.

“I cannot stand the whole anti vaccine issue when it comes to autism.  People they say it causes autism, but if you ever research Andrew Wakefield (who said that they are linked), not only did that article get pulled and found to be fraudulent, but it also stated that he had facts.  Not to also add that he was banned from practicing medicine in the UK. So why would you listen to a man who lost his license?

Being Autistic, I find it horribly offensive when mothers say they won’t vaccinate their kids because they think it causes autism. It’s like saying I am a broken toy.  Should we be discarded just because we have autism?

I know that’s not what their point is, but think about it.  I have autism.  But I’m married and have been in a relationship for close to ten years with the same woman. I have worked multiple jobs, and my last job lasted for five years.  I didn’t promote or ever go too far within the jobs (counseling would’ve done wonders but I didn’t have health care) but I am a normal citizen who contributes to society.

So you’d rather your kid die from polio than have a kid you have to teach differently (and we’re learning new ways to teach all the time).

I do at times get frustrated with my autism, but I also look at it as a blessing.  Ask me about any horror movie and I am pretty sure I can talk your ear off about it without looking anything up. Same with my memory because of my autism I can still recall what my wife wore to our first date. Plus I know because of my autism I look at things from a completely different perspective, and I notice patterns and other things most “Normal Neuros” don’t see.

I just don’t see the whole point in avoiding these diseases like measles and that can spread just because you’re scared of one disorder.  Because I got vaccines, I can live to be an old man.  Some kids that don’t get vaccinated might not live past 40.

It just really pisses me off when I hear someone say that they won’t vaccinate their children and they don’t do the research.  They just go off the first TV show or article that brought it up.

Before you decide, go talk to a family or someone with autism.  Don’t judge, and don’t make a decision based on BS medical reports.”

Justin and I both have talked about this.  We don’t want children as you know, but if we did, we would vaccinate without question.  I’d rather my child be autistic than get measles or some other physical disease that could cause them to die at any time.

What do you think?

Vaccines

The Intimate Details

“Autistic people can’t have intimate relationships.”

“Autistic people can’t feel emotions or love.”

“Autistic people die virgins.”  (Yes, that’s legitimately a real statement)

I’ve talked about sex on here before…it’s a topic people avoid, but I don’t.  For some reason sex is given this “hush hush” attitude, when we should be celebrating it.  You’re trying to tell me that the closest you can get to someone is something we should almost be ashamed of?  Well, sir, I disagree.  This is something that we should celebrate.

When we first started dating, as most of you know, I didn’t realize Justin had Asperger’s.  I didn’t think he liked the hugging, kissing, snuggly stuff, and I was totally fine with that.  Just because someone doesn’t smoosh you with their lovey stuff doesn’t mean they don’t feel it.  A lot of people thought that we weren’t really close or comfortable with each other, but that certainly wasn’t the case.  I was comfortable with Justin after the first hour (and my dog also approved).

When it comes to intimacy, part of Asperger’s and being on the Autism spectrum does mean they have a hard time connecting and being able to display affection.  It made so much sense when he was diagnosed, because he does have a hard time with affection.  He doesn’t randomly hug or kiss me, or snuggle me, or that stuff (did I say I’m okay with that?  I promise…I am).  Since he started smoking pot, though, it’s really helped him with his confidence, and now daily he is more able to show his affection for me.  He kisses me and hugs me more, and I can’t support it enough (obviously).

Sex is something different for people on the Autism spectrum.  I see portrayals of Aspies and ASD people in relationships and sex is some foreign, weird thing for them.  Oddly enough, Justin said he’s never had problems with that aspect of a relationship.  I think because he can focus just on that, and it’s the easiest way for him to show his love.  How much more intimate can you get, really?

I will spare you the graphic details of it all (but it’s GREAT), but I want to get the word out that just because you’ve got an Aspie or ASD partner doesn’t mean that intimacy needs to be some foreign thing.  And even those without Autism.  Everyone should celebrate the joy that comes with being in one world for a minute with someone else.  Nothing else matters but that.

How awesome is that?

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